I looks like Drew has
Von Willebrande's Disease. Funny... it's not really a disease. It's more just a condition, a way of being. So, where do we go from here? We have another appointment with the hematologist on Monday. We are doing a drug trial. The drug is called
DDAVP. It corrects the problem in a lot of people with
Von Wille's. We have to draw blood, give the
DDVAP and then draw the blood again to see if it improves his condition. If it is effective, we can use it before
surgery to prevent bleeding problems. I am hoping we walk away from the hematologist on Monday with some answers. I just want to get the go ahead for
surgery! We really need to get this done! At least now we have had the chance to investigate Drew's tendancy toward bleeding and hopefully fix it for this and future surgeries! I will be adding some links to info. on
Von Willebrande's Disease to my long list of helpful links for those of you who want to know more!